Rep. Camillo advocates for Fibrolamellar Awareness

State Representative Fred Camillo (R-151) joined the Fibrolamellar Cancer Foundation (FCF) at the State Capitol’s Rare Disease Day on Thursday, February 25 to assist in raising awareness for Fibrolemellar and other rare diseases.

Fibrolemellar is short for Fibrolamellar Hepatocellular Carcinoma which is a rare form of liver cancer that usually occurs in young adults who have no history of liver disease. Each year, approximately 200 people are diagnosed with this cancer worldwide. The Fibrolemellar Cancer Foundation is located in Rep. Camillo’s district and funds research and support toward the disease, as well as creates a way for patients suffering from the disease to get in contact with one another.

“There is nothing more heartbreaking for a parent to receive news that their child is sick—and what is worse—there is nothing they can do about it. My sister died of a rare disease which makes it a very personal issue for me. I believe it is critical that our state provide support for rare diseases like Fibrolemellar and others. I can’t be more proud of the work that the Fibrolamellar Cancer Foundation has done and the Greenwich community is happy to support them,” said Rep. Camillo.

Among residents in Connecticut, it is estimated that estimated 357,000 residents are living with a rare disease.

Rare Disease Day is an annual awareness day celebrated around the world dedicated to elevating public understanding of rare diseases and calling attention to the special challenges faced by patients. The goal of Rare Disease Day, organized by the National Organization for Rare Disorders (NORD)® (Danbury CT national headquarters) is to foster collaborative efforts across all stakeholders, especially government, to increase awareness, improve care support, encourage research, and advocate resources- financial and others- to address this growing population- in hopes for a healthier community.

State Representative Fred Camillo (R-151) joined the Fibrolamellar Cancer Foundation (FCF) at the State Capitol’s Rare Disease Day on Thursday, February 25

State Representative Fred Camillo (R-151) joined the Fibrolamellar Cancer Foundation (FCF) at the State Capitol’s Rare Disease Day on Thursday, February 25

 

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